Press release
September 6, 2017

UCI, Part of a Six-Institution Collaboration, Receives NSF Grant for Groundbreaking Study on Big Data Ethics

From mobile phone apps to website search engines, wearable technology to social platforms, consumer information has become highly trackable and available, resulting in an ethically questionable free-for- all in research and marketing. But consumers aren’t the only ones concerned about how their personal information is being collected and used. The University of California, Irvine is part of six research intuition project team to explore the ethics of how these data are captured and used.

The four-year project, PERVADE (Pervasive Data Ethics for Computational Research), was awarded a $3 million grant from the National Science Foundation in August 2017. Prior research on ethics of large and pervasive data has hit roadblocks caused by a lack of empirical knowledge. The PERVADE team looks to “reveal ethical practices and norms to guide those who utilize big data and to inform policymaking and regulation,” says Dr. Katie Shilton, Associate Professor in the College of Information Studies at UMD and primary investigator on the grant.

PERVADE brings together a multi-disciplinary team with expertise in computational science, research ethics, data practices, law and policy, health information, social computing, qualitative and quantitative research methods, and data privacy:

Dr. Katie Shilton - College of Information Studies at the University of Maryland, College Park
Dr. Jessica Vitak - College of Information Studies at the University of Maryland, College Park
Dr. Matthew Bietz - Department of Informatics at the University of California, Irvine
Dr. Casey Fiesler - Department of Information Science at University of Colorado, Boulder
Dr. Jacob Metcalf - Data & Society Research Institute
Dr. Arvind Narayanan - Department of Computer Science at Princeton University
Dr. Michael Zimmer - School of Information Studies at the University of Wisconsin-Milwaukee

The project’s research focus will extend across consumers, big data researchers, commercial providers, and regulators, both domestically and internationally, to explore how these diverse stakeholders understand their ethical obligations and choices, and how their decisions impact data system design and use.

Dr. Matthew Bietz, Assistant Researcher in the Department of Informatics at UC Irvine will lead the team’s efforts in understanding how those who create pervasive data—users of social media, fitness trackers, etc.—feel about their data being used in research. He will also lead the group’s cross-cutting focus on how vulnerable populations are affected by pervasive data. The PERVADE team will also examine the social factors that influence people’s willingness to share their data; how and when consent should be given; and how consumers’ concerns can be shared with data system designers and big data researchers.

“Big data has the potential to transform our understanding of human behavior and health. We want to ensure that this research is conducted ethically and in line with individuals’ expectations,” Dr. Bietz says. The team aims to use project findings to guide best practices for each stakeholder group using decision-support tools, risk measurement methods, public educational materials, and an open dataset of findings by the end of the project in 2021.

About the University of California, Irvine: Founded in 1965, UCI is the youngest member of the prestigious Association of American Universities. The campus has produced three Nobel laureates and is known for its academic achievement, premier research, innovation and anteater mascot. Led by Chancellor Howard Gillman, UCI has more than 30,000 students and offers 192 degree programs. It’s located in one of the world’s safest and most economically vibrant communities and is Orange County’s second-largest employer, contributing $5 billion annually to the local economy. For more on UCI, visit www.uci.edu.

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